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Using this website

Welcome to the JIA website for parents of children newly diagnosed with Juvenile Idiopathic Arthritis (JIA).

We know that this can be a difficult time for the whole family, and have designed this website to support you in the first 12 months of finding out that your child has JIA.  On this website you will find:

  • Relevant and up to date information about JIA, and

  • Ideas about how to develope the skills you need to manage JIA, and successfully cope with things that you may be facing in the first 12 months.

It has been designed for every family, and as such covers a wide range of information.  It is up to you to decide which areas of information you think are most relevant to your own situation, and which skills you would like to try and develop.

We have designed this website to be interactive.  At first we suggest that you browse and get to know the website, taking time to read the information and facts about JIA and treatment.

We then invite you to think about any areas of coping with JIA that you would like support with, or would like to change, and finally, try some new skills at hospital and at home.

It is entirely up to you if you wish to do this.  Some people may want only to look for information.  Others may want to make changes in certain areas (for example: managing procedures or pain), and will find the skill sections helpful.

How will you help me develop skills to manage my child's JIA?

We will help you in the following ways:

  • Invite you to identify and prioritise areas you want to work on with your child (for example:  manageing procedures)

  • Set realistic goals which describe what you want to achieve (for example: to help you child to manage their methotrexate injection at home - refer to your JIA toolkit )

  • Offer you different skills, tips and techniques to help you achieve you goal(s)

  • Help you to review your goal(s) and think about what worked well and what you would like to continue working on

  • Give us important feedback about your experience of this website, to help us make necessary changes for any future research studies.

We hope that, by doing this, you will gain more confidence in your ability to cope with JIA in a way that helps you and your child live a fulfilling and active life.

Website developed & maintained by Dataphiles Ltd